2020 Global Genes LIVE! RARE Patient Advocacy (un)Summit is a two-week event that will provide members of the rare disease community, stakeholders, and allies with opportunities to connect and engage with each other through interactive activities paired with educational programming. Participants will gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and strategic ways to accelerate change.
Eric Faulkner, Vice President, Real-World Value and Strategy, and Executive Director, Center of Excellence – Precision and Transformative Medicine, will be presenting an educational session on September 24th, from 12:00 – 1:00pm ET titled, Be Heard: Patient Perspectives in Novel Therapeutics Value-based Discussions.